top of page

Dr. Marco Zampoli, an Associate Professor in Paediatrics at the University of Cape Town, leader of this network, has had profound impacts on the advancements of CF in Africa.

Leah Ratner
  1. "Real-world disparities and ethical considerations with access to CFTR modulator drugs: Mind the gap!" (2023)

    • Summary: This article discusses the disparities in access to CFTR modulator therapies for cystic fibrosis patients in low- and middle-income countries, emphasizing ethical considerations and the need for equitable access.

    • Link: Frontiers in Pharmacology

  2. "Tackling asthma treatment in Africa" (2024)

  3. "Factors associated with clinical progression to severe COVID-19 in people with cystic fibrosis: A global observational study" (2022)

    • Summary: This study identifies factors linked to the progression of COVID-19 in individuals with cystic fibrosis, providing insights into risk factors and outcomes.

    • Link: Journal of Cystic Fibrosis

  4. "Cough augmentation techniques for people with chronic neuromuscular disorders" (2021)

    • Summary: This Cochrane review evaluates the efficacy and safety of various cough augmentation techniques in individuals with chronic neuromuscular disorders.

    • Link: Cochrane Database of Systematic Reviews

  5. "Clinical characteristics of SARS-CoV-2 infection in children with cystic fibrosis: an international observational study" (2021)

    • Summary: This study examines the clinical features of COVID-19 in children with cystic fibrosis, contributing to the understanding of the virus's impact on this vulnerable population.


  • Launch of the South African Cystic Fibrosis Registry Report (December 2020)

    • Details: Dr. Zampoli led the launch of the first comprehensive report from the SACFR, documenting data on individuals affected by CF in South Africa. The registry, established in 2018 in partnership with the South African Cystic Fibrosis Association, aims to monitor progress and advocate for improved care. Dr. Zampoli emphasized the registry's role in identifying deficiencies in CF care and guiding interventions to address these issues.

    • Link: University of Cape Town News

  • Advocacy for Access to CFTR Modulator Drugs (2024)

    • Details: During the South African Cystic Fibrosis Association's Annual General Meeting, Dr. Zampoli emphasized the importance of collective action to achieve access to CFTR modulator drugs for all CF patients. He encouraged strengthened advocacy from the CF community to negotiate fair pricing and ensure the drug’s inclusion in public healthcare systems.

    • Link: SACFA AGM Summary

Dr. Zampoli's dedication to CF advocacy and his leadership in establishing the SACFR have been pivotal in enhancing the understanding and treatment of cystic fibrosis in South Africa. His efforts continue to drive progress toward equitable access to advanced CF therapies and improved patient care nationwide.

 
 
 

Recent Posts

See All

Comments


bottom of page