Cystic Fibrosis in Africa Research Network
Welcome
أهلاً وسهلاً
Barka da zuwa
Ẹ kú abọ
Akwaaba
Woezɔ
Nangadef
Karibu
Karibu
እንኳን ደህና መጣህ
Baga nagaan dhufte
Boyei bolamu
Mauya
Takulandirani
Murakaza neza
Soyez les bienvenus
Welcome to the Pan-African Cystic Fibrosis Research Network!
We are a collaborative community of clinicians, researchers, scientists, and advocates — both across Africa and around the world — united by a shared commitment to improving research, visibility, and understanding of cystic fibrosis on the African continent. Nous sommes une communauté collaborative de cliniciens, chercheurs, scientifiques et défenseurs — à travers l’Afrique et dans le monde — unis par un engagement commun à améliorer la recherche, la visibilité et la compréhension de la mucoviscidose sur le continent africain. مرحباً بكم في شبكة أبحاث التليف الكيسي في إفريقيا! نحن مجتمع تعاوني من الأطباء والباحثين والعلماء والمدافعين – في جميع أنحاء إفريقيا والعالم – متحدون بالتزام مشترك لتحسين البحث وزيادة الوعي وفهم التليف الكيسي في القارة الإفريقية.
Countries involved..
We are a group of clinicians, researchers, lab scientists, advocates who have come together to help advance awareness and understanding of Cystic Fibrosis in Africa
Research
Interested in our research priorities? Join our research working group!
Advocacy
We are especially eager for both allys and people living with CF both on and off the continent to help us advocate. Join us!
Registry
Interested in helping or being part of our initiative to create a Pan-African Cystic Fibrosis Registry?
Clinical
We run a monthly case conference to help learn from each other. Have a case to share? Interested in joining?
*all cases are discussed without indentifying information
New Podcast Interview with Network Member!
Past publications
Network Citations:
Ratner, Leah, et al. “Developing a Collaborative Network for Cystic Fibrosis in Africa: A Call to Action.” Journal of Cystic Fibrosis, 2025, p. S1569199325015711, https://doi.org/10.1016/j.jcf.2025.08.013.
Leah Ratner, Diana Marangu-Boore, Samia Hamouda, Sandra Kwarteng Owusu, Joy Nkiru Eze, Abate Yeshidinber Weldetsadik, Areej Dakshi, Seyram Wordui, Ahmed Hamdy, Sheila Agyeiwaa Owusu, Ahmet Uluer, Houria Daimi, Nada EL Makhzen, Hugues Abriel, Shahida Moosa, Chandra Swanson, Samya Nasr, Alexandria E. Cronin, Marco Zampoli. Clinical presentation of Cystic Fibrosis in Africa and African Diaspora Populations: A Systematic Review . PROSPERO 2025 CRD420251068369. Available from https://www.crd.york.ac.uk/PROSPERO/view/CRD420251068369.
Muriel Helmers, Samya Z. Nasr, Abate Yeshidinber Weldetsadik, Janine Verstraete, Leah Ratner, Nada El Makhzen, Houria Daimi, Hugues Abriel, Marco Zampoli “Creation of a Pan- African Cystic Fibrosis Registry.” [Seattle, WA, USA], 2025. North American Cystic Fibrosis ConferenceSeattle, WA, USA.
Diana Marangu-Boore, Leah Ratner Hugues Abriel Muriel Helmers Ahmet Uluer R. Elaine Cagnina Chandra Swanson Abate Yeshidinber Weldetsadik Sheila Ageiywaa Owusu Grace Hennessy, Houria Daimi Fahmida Essop, and Abate Y. Weldetsadik Nada EL Makhzen Sandra Kwarteng Owusu Seyram M Wordui Annette Uwineza Samya Z. Nasr Marco Zampoli. “Building a Pan-African Collaborative Network for Cystic Fibrosis: Early Lessons and Shared Priorities.” Oral Presentation and Poster. Seattle WA, USA, https://nacfc2025.eventscribe.net/. North American Cystic Fibrosis Conference Seattle WA, USA.
